The page provides links to examples of guidelines and policies for sharing clinical, genetic and public health research data from research funders, regulatory agencies and journals.
Please send recommendations for resources to add to this collection to email@example.com or via our discussion group or blogs. Data sharing policies and governance processes for specific data respositories and studies are available here. Reports on aspects of best practices in sharing individual-level data from health research are available here. National and international regulations on privacy and data protection are included in the US Office of Human Research Protections (OHRP) compilation of Human Research Standards.