Upcoming seminar series from the Global Forum on Bioethics in Research (GFBR):
Ethical issues arising in research with people with mental health conditions

GFBR is the principal global platform for debate on ethical issues pertaining to international health research. Its core aims are to give voice to low- and middle- income country perspectives in debates about global health research ethics and to promote collaboration. The Forum meets annually to address a specific topic in research ethics and is case study based. Up to 100 participants attend each meeting, coming from a diverse range of disciplines, countries and career stages.

In the lead up to the annual GFBR meeting in November 2021, this seminar series will provide an opportunity to discuss some of the key ethics and governance issues regarding mental health research. It will also address the ethics of involving people with mental health problems in research more broadly. This background paper contains information about the GFBR theme and details for the individual seminars are below. The seminar series is open to all, so please do join us!

Dates

Seminar 1 - Mon 27 September - The impact of COVID-19 on mental health research: ethical issues (with the Epidemic Ethics series)
Seminar 2 - Weds 13 October - Equipping researchers to ethically involve people with mental health conditions in research
Seminar 3 - Tues 26 October - Governance of research involving people with mental health conditions
Seminar 4 - Tues 9 November - The ethics of neurodevelopmental disorders research
Seminar 5 - Tues 23 November - Mental health research involving adolescents


Seminar 1 - The impact of COVID-19 on mental health research: ethical issues

Monday 27 September 2021 | 1PM BST (GMT+1)

This seminar is jointly held with the Epidemic Ethics seminar series

This seminar will explore the ethics of how mental health research practice has changed due to the COVID-19 pandemic. Discussion will include the ethical implications of transferring face-to-face research online and what safeguards are needed to protect the wellbeing of participants at a time when support from the research team or external services may be reduced due to social distancing and other restrictions. How do we ensure ethically robust mental health research in the time of COVID-19 and how best can researchers involve people with lived experience in the design of research as it transitions to the digital world?

Chair: Ross Upshur, University of Toronto, Canada

Panel:
Professor Ellen Townsend
, Self-harm Research Group, University of Nottingham, UK 
Dr Abhishek Ghosh, Postgraduate Institute of Medical Education & Research, India 
Professor Jackie Hoare, Consultation–Liaison Psychiatry, University of Cape Town, South Africa

This briefing note contains the questions that will be explored during the discussion, and background reading | Download briefing note [PDF, 104kb]

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Seminar 2 - Equipping researchers to ethically involve people with mental health conditions in research

Wednesday 13 October | 1PM BST (GMT+1) | Register

This seminar will draw on researchers' personal and shared experiences to discuss the ethical challenges of involving people with mental health conditions in empirical research. What creative approaches have researchers used to ethically involve people who face multiple vulnerabilities and how do these vulnerabilities impact on the practicalities of the research process (e.g. consent and community engagement)?  

Chair: Jantina de Vries, University of Cape Town, South Africa

Panel: 
Violet Naanyu, Associate Professor, Moi University, Kenya
Eric Racine, Research Unit Director, Montreal Clinical Research Institute, Canada
Anna Chiumento, Research Associate Primary Care & Mental Health, Liverpool University, UK

This briefing note contains the questions that will be explored during the discussion, and background reading | Download briefing notes [PDF, 144kb]

Access Person-oriented research ethics: integrating relational and everyday ethics in research, M. Ariel Cascio & Eric Racine here

Recording available soon

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Seminar 3 - Governance of research involving people with mental health conditions

Tuesday 26 October | 1PM BST (GMT+1) | Register

International guidelines provide principles to guide research with people who have mental health problems. However, obstacles remain for implementation at a national level. What are the challenges to ensuring people with mental health conditions have equitable access and opportunities to participate in research, and balancing protections to safeguard their rights and welfare? This seminar will explore three LMIC case studies and highlight the need for culturally sensitive mental health law and guidance and training for researchers and research ethics committees. 

Chair: Ana Palmero, Ministry of Health, Argentina 

Panel and presentations
Margaret Ojeahere, Jos University Teaching Hospital, Nigeria
 - Governance in bioethics and mental health research in Nigeria: Are we there yet?

Mercury Shitindo, St Paul's University, Kenya
 - Strengthening research capacity in mental health research in low and middle- income countries

Haswira Nor, Universiti Teknologi MARA, Malaysia
 - Equity based research ethics governance model for the inclusion of people with mental health conditions in research

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Seminar 4 - The ethics of neurodevelopmental disorders research

Tuesday 9 November | 1PM GMT | Register

Chair: Sharon Kleintjes, University of Cape Town, South Africa 

Panel and presentations: 
Ruth Tsigebrhan
, Addis Ababa University, Ethiopia
 - Exclusion criteria versus ethical principle of justice in conducting research in low-income settings

Zsófia Szlamka, King’s College London, UK
 - Who has the right to empower? The case of caregivers of children with developmental disorders

Ashok Mysore Visweswariah, St. John’s Medical College Hospital, India
 - The spectrum of challenges in conducting research for the early identification of Autism Spectrum Disorders

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Seminar 5 - Mental health research involving adolescents

Tuesday 23 November | 1PM GMT | Register

Chair: Katharine Wright, Nuffield Council on Bioethics, UK

Panel and presentations
Pallab Maulik
, George Institute for Global Health, India
 - Adolescents’ resilience and treatment needs for mental health in Indian slums (ARTEMIS)

Rakhshi Memon, University College London, UK
 - Ethical issues in Randomised Clinical Trials for Adolescents who Self-Harm: the limits of equipoise and evidence

Pamela Garbus, Universidad Autónoma de Querétaro, Mexico
 - Research ethics in an epidemiological study of adolescent mental health in Mexico

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