A rapid review of community engagement and informed consent processes for adaptive platform trials and alternative design trials for public health emergencies

Descendants of Conscientious Objectors Sharing Their Stories

Archibald Baxter is the best known conscientious objector and his story is well documented in his biography We will not Cease. However, many other men in the First and Second World War took a pacifist stance and them and their families were persecuted for it.

Promising practices in the engagement of people living with or at risk for HIV/AIDS in rural Canada [Updated]

The research is a community-based research (CBR) study intended to (1) contribute to the understanding of how the “Greater Involvement of Persons Living with HIV/AIDS” (GIPA) principle is operationalized in rural regions, and (2) to provide direction to AIDS Service Organizations (ASOs), policymakers and people living with HIV/AIDS (PHAs) or at-risk for HIV about how the ideals of GIPA could be fully realized within ASOs in rural regions of Canada, specifically in the rural regions of the Maritime provinces (Nova Scotia [NS], New Brunswick [NB], and Prince Edward Island [PEI]).

Images & Voices: An Arts-Based Qualitative Study Using Photovoice to Understand the Needs & Aspirations of Sex Workers in Portland, Oregon

The ways in which sex workers have been studied and represented historically, socio-politically and academically do not take into account their voices and participation in the process. Arts-based research provides the potential for collaboratively developing unique knowledge and insight about the experiences of sex workers and the meanings assigned to those experiences. 

Vulnerability and Exclusion from Research

Many of the scandals that surround modern medicine involve research conducted on human subjects. Consequently when discussion turns to the ethics of research, such atrocities as the Nazi hypothermia experiments at Dachau conentration camp during World War Two (Berger 1990) or the Tuskegee Syphilis Study in Alabama beginning in the 1930s (Pence 2000) are never far from the surface...The reaction to these atrocities has, justifiably, been extreme. In this paper, Sheehan considers the consequences of these reactions - the exclusion of particular groups from participation in research.

Informed Consent

The informed consent process is fundamental to ensuring that clinical trials are conducted ethically. This article outlines some issues to consider.