Update: The WHO position on Developing Global Norms for Sharing Data and Results during Public Health Emergencies is now available. In a Bulletin of the World Health Organization Editorial Christopher Dye, Kidist Bartolomeos, Vasee Moorthy & Marie Paule Kieny discuss a novel data sharing and reporting protocol put in place for articles submitted in the context of the Zika virus epidemic.
18 September 2015
In February 2015 Nathan Yozwiak, Stephen Schaffner and Pardis Sabeti called for principles to be established for rapid and responsible data sharing in epidemics. See their Comment in Nature for more details. http://www.nature.com/news/data-sharing-make-outbreak-research-open-access-1.16966
The WHO held a meeting in September 2015 to discuss Developing Global Norms for Sharing Data and Results during Public Health Emergencies - a meeting summary is available at http://www.who.int/medicines/ebola-treatment/data-sharing_phe/en/ and a fuller report will follow shortly.
- Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholders
- Wellcome and Open Research
- Understandings of genomic research in developing countries: a qualitative study of the views of MalariaGEN participants in Mali
A very important initiative. Every country needs to consider this initiative.
I really like this one. I think reserach data should be shared!
WHO is making a great step again. I really like the way they develop.
I hope Polish government will see this post some day.