Ethics and data sharing resources
Below are links to collections of resources to support the development of data sharing policies and processes. Please send recommendations for resources to add to this collection to bioethicsresearchreview@tghn.org or via our discussion group.
Policies and Guidance - for sharing clinical, genetic and public health research data from research funders, regulatory agencies and journals
Reports - about best practices in sharing individual-level human research data from a range of sources
Articles - from peer reviewed journals discussing ethical and policy aspects of sharing individual-level data from clinical and public health research
Platforms and Governance - for sharing clinical, genetic, social science and public health research data or supporting data curation and sharing.